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My unique case question (hope this doesn't violate rule 1)

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Hey everyone, Im hoping that I'm not breaking the rules with this post. I have an appointment with a Neurosurgeon coming up and I'm not looking for advice from anyone here. Rather I'm hoping to gather information to ask the surgeon about. If I'm breaking any rules I will happily take this post down.

I'll do my best to be brief. I have a laundry list of symptoms that I've been seeing Doctors about for a few years, rarely do I get helpful answers. I had a weird finding in my bloodwork (low IgM, every other test normal) last year, after several cases of Pneumonia. I worked in Ophthalmology for a bit, met a few patients with Cushing's disease from a Pituitary Adenoma. Their descriptions and presentation was very similar to what I've experienced. So due to that and months of recurring headaches. I saw a Neurologist for some imaging. After 2 MRIs and a follow up, it appears I have a Clival Lipoma(1.7cm).

This is something that my neurologist said isn't commonly seen so I could consult with the Neurosurgeon, but we'll likely just monitor. So ultimately my question is? How confident can a radiologist be that a lesion is a lipoma? Is there any chance another mass could have a similar appearance?

I plan to ask the Neurosurgeon this same question, but I'm hoping to gather information to learn how hard to press the issue. I asked the Neurologist this and she said it was basically beyond her as she's never seen something like this before and she was dependant on the radiologist's findings.

Again I'm looking for data and information about Clival lesions, not medical advice nor a diagnosis from Reddit. Thank you to whoever is able to keep me informed.

submitted by /u/StableWeak
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source https://www.reddit.com/r/Radiology/comments/ogwfpi/my_unique_case_question_hope_this_doesnt_violate/
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